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Wish I knew what to do

I have been married for 30 years. I have suffered with chronic cystitus for all 30 years. I never had problems with intercourse until about 3 years ago. All of a sudden the pain during and after is incredible. Pain upon penetration is so bad and then when we would finally succeed at that, the burning begins and burns for hours afterwards.  

I never related the cystitus with the intercourse pain until after reading stories in this site.

I went to the doctor twice during the last several years to find why I started having pain. I thought maybe it was due to going thru menopause.

The doctors would run tests, but when nothing showed up in the tests, it was like I was just forgotten and the task to finding the answer to my problem stopped.

It has really started to affect my relationship with my husband the last several months. For the longest time, my husband was understanding and supportive and finally just quit asking for it. I felt really guilty about it.  

I’m even afraid my husband my have gone and had an affair. It’s been a rough month.

Thanks for listening!    

I forgot to laugh

Sam laughed. In fact, he giggled. And I wanted to cry. I was sad because I haven’t heard Sam laugh in so long. And sad because it was with his father, with whom I’m not laughing and to whom I’m no longer married. Don’t get me wrong, Sam’s dad and I get along … I just wanted my share of that bonding laughter with my son.

There’s a point to this that has to do with chronic pelvic pain and relationships. But bear with me a moment.

Sam was at his dad’s house. I called and his dad handed him the phone. I heard muffled laughter. And whatever they were doing, the phone had loud difficulty traveling from father to son. When Sam finally received it, the giggling continued … briefly. And then, a somber “hi.” With an implied, “what?” Followed by a silent (but I could hear it in my mind) sigh.

Sam is nearly 17. Perhaps that explains the lack of laughter overall. And I’m his mother, which probably explains it even more.

I asked what was so funny. “Nuthin.” Clearly sullen. I wanted to laugh along with him. It just didn’t feel fair. I raised him. He owes me (ok, ok, I’m a Jewish mother, forgive me). And, while hearing his big-little kid giggle was music to my ears, still my throat tightened.

After I got off the phone, I realized how little I laugh now. I just haven’t felt well probably most of my nearly 53 years for one or another reason, depending on the decade. But, still, my attitude was always that laughter was the only way to get through the dark times, to get through life at all with any measure of sanity.

In fact, I raised Sam with that philosophy since he was about, oh, two years old. Integrity and humor were two of the biggest watchwords in my home. As for humor, Groucho, Abbott and Costello, and Borscht Belt comedians. Too early with Sam, maybe, we moved on to political satirists and those who find humor in the mundane.

My combined symptoms and conditions that lead to sexual pain, which have led to this site and the book I am writing with Dr. E., are so serious. And I didn’t realize how they have robbed me of more than sexual satisfaction. They are robbing me of what I consider my life force … that ability to laugh, to find humor in the dark corners.

I have fibromyalgia, irritable bowel, interstitial cystitis, vulvodynia, vestibulitis, probably a larger list if I think hard enough. Oh yes, and migraines. I’ve learned more and more about how all of these conditions contribute to one big mess called chronic pelvic pain, which in turn contributes to and exacerbates sexual pain. Which is not funny at all.

And this has translated into a very unfunny, complaining, critical attitude that certainly doesn’t invite my son to feel gleeful around me (nor my husband, I suppose). It seems all my interactions with the people I love, not just my husband, seem to be colored by my symptoms.

So I was trying to remember the last time I laughed so hard that, if you’ll excuse the expression, I nearly “pee’d my pants,” There have been a few in the past year, but I believe, not enough. Study after study show the healing power of laughter. In fact, there is actually a foundation called, “Laughter Heals” that is all about this very subject.

My husband is a very funny man, in a wry, dry sort of witty way. We’ve had some rocky times over the past seven years since we met. Lots. And my sexual problems and indescribable pain at times certainly haven’t helped. But I cannot tell you how much his humor as we walk along the path together have helped our marriage.

After 9/11, I was a basket case for about six months, as were many of us, walking around feeling hollow and scared. I live in Florida, a far cry from the center of the horror, but emotionally decimated nonetheless. One day, much later, a comic shared his own pain with humor … and I laughed out loud with relief. And I remembered thinking, “Thank God for the comedians. Where would we be without them in the world of today?”

Tonight, I bought tickets for Sam and I to see a comedian we love. For a few hours, my pain will take a back seat. I’ll spend two hours hearing Sam’s laughter. And while I’m sure I’ll have tears streaming down my face, I know it will be with joy.

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What are your thoughts?

Redbook online magazine has an article about sexual pain and related issues

Someone sent me the latest newsletter from the ICHelp website (great organization), which links to an article in Redbook magazine about sexual and pelvic pain.

It’s called Your (Very Personal) Health at 20 30 40 50. Here’s quote from the article: “From painful intercourse (which strikes women even in their 20s) to unplanned pregnancy (which happens—surprise!—to about 40 percent of women who conceive in their 40s), a wide array of down-there concerns affect women in every decade. In fact, one third of us will be treated for a pelvic-health disorder by age 60, according to a report from the National Women’s Health Resource Center (NWHRC), and experts suspect that many more of us are too embarrassed to tell our doctors about such concerns—and so suffer unnecessarily.”

I am so happy to see this. I’d love to read your comments about this article. In fact, I just posted on the article and I urge everyone to comment there as well! The more we raise our voice in the mainstream media, the more attention this subject will get. Again - here is the link: Redbook Magazine Article.

Vulvodynia is not caused by sex

The website - www.allheadlinenews.com just published an article from Christin Veasley of the National Vulvodynia Association (NVA). People have a lot of misconceptions about vulvodynia, according to the article. To quote the article: “The cause is not associated to sex, the NVA says, but rather an injury to, or irritation of, the nerves that innervate the vulva; infection or trauma in the vulva; genetic factors; hypersensitivity to yeast; or spasms of the muscles that support the pelvic organs.” They also say that vulvodynia is not caused by a sexually transmitted disease.

According to the article, MedicalNews Today recommended a number of self-care measures, such as avoiding tight-fitting garments. Click here to read the full article.