Do you suffer from…

…Vaginal/vulvar itching, burning, stabbing/throbbing sensations; painful sex; urinary urgency/frequency/pain? If so, then you’ve just found a “Hope Chest” filled with information & support.

We’ll explain how the conditions that trigger “chronic pelvic pain syndrome” (such as irritable bowel, interstitial cystitis, painful bladder syndrome, vulvodynia, vestibulitis, endometriosis) cause sexual pain and what you need to know to get help.

 

Download a free excerpt from our booklet, “64 Tips to Relieve Sexual & Pelvic Pain,” and get Secret Suffering updates when you subscribe.

Please enter your email address to download free tips from our booklet & join our mailing list.

TV Interview with Dr. Echenberg

Below is a segment about interstitial cystitis,
featuring Dr. E and one of his patients.
This segment aired on the Lehigh Valley, PA
television show, "Talk to Your Doctor."

"In our practice, approximately 85 – 90% of
patients with chronic pelvic pain – no
matter what the cause – experience sexual
pain or discomfort as the main contributor
to their diminished quality of life."
Dr. Echenberg

IPPS Cover Story by Dr. Echenberg

November 2008 issue of the International Pelvic Pain Society newsletter cover story (PDF): A Tribute to Dr. C. Paul Perry: One Clinician's Experience with a Successful Model for Chronic Pelvic Pain Management

You don’t have to suffer in secret any longer!

Take a look around our site, download our free tips, and then go to our Healing Room blog to begin sharing your story, questions, and thoughts with others in our community.

On the Secret Suffering website, we’ve created a safe haven for you to share your story and thoughts about sexual/pelvic pain and read others’, hear what experts in the field of sexual pain have to say, get the latest news and more. We encourage you or partners of those who suffer to blog in our Healing Room.

Our book, “Secret Suffering:How Women’s Sexual & Pelvic Pain Affects Their Relationships” is now available!

Listen to the audio endorsement from Jill Osborne, President of the Interstitial Cystitis Network

(Click here to read the Table of Contents. Click here for our press release)

Our book, “Secret Suffering: How Women’s Sexual and Pelvic Pain Affects Their Relationships” is now available. It’s available at Amazon and Barnes and Noble. However, we now have a limited number of the book available on our website. Click here for more information and to order.

“Secret Suffering” is the first book that tells the story of how pelvic and sexual pain affects the lives of women and their partners in their own words, provides information on cutting-edge research and treatments, and shares methods to facilitate your healing with your doctor. Susan Bilheimer, co-author, shares her own experiences as a patient who has gone down the painful, frustrating road of living with an illness that is often dismissed and not taken seriously. Robert J. Echenberg, M.D., shares his decades of experience and expertise as a gynecologist and specialist in the treatment of chronic pelvic pain.

Read endorsements from experts in the field.

Who we are

Susan Bilheimer, author and chronic pelvic pain sufferer, created the Secret Suffering website with the medical expertise of Dr. Robert J. Echenberg, a gynecologist and specialist in the field of pelvic and sexual pain and women’s health for over three decades. Dr. Echenberg’s practice, Women’s Health Care Associates, is located in Bethlehem, PA. Susan also maintains a resource site for women in perimenopause You can read more about them here. Follow us on Twitter - Susan’s Twitter and Dr. Echenberg’s Twitter.

“64 Tips to Relieve Sexual Pain Tips Booklet” and “Pain Trigger Journal”

Dr. Echenberg and I (Susan Bilheimer) have written a tips booklet with suggestions on how to help yourself as you work with your doctor and for doctors to give to their patients. Plus, we’ve developed a really thorough pain trigger journal so you can figure out what makes you better and worse. It will be an invaluable tool to help yourself as well as guide your doctor to treating you. These products are available now, along with a free membership to our forum!

Privacy Policy

Our Privacy Policy is very simple – we will never sell, share or distribute your contact information in any way. Period.

Usage Policy

We have a very strict usage policy for this site. www.SecretSuffering.com is intended as a safe and comfortable online home for those who suffer from a very sensitive and delicate condition. Unsolicited advertising, spamming, flaming or inappropriate comments will be immediately deleted and their senders barred from future postings.

We want your feedback!

Please feel free to contact us at any time with your suggestions and comments.

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